Showing posts with label meds. Show all posts
Showing posts with label meds. Show all posts

Friday, September 13, 2013

So much has been happening...

That I just kept putting off writing it down.  I kept thinking I'd do it later.  

I made it through what seemed like milestones to me.  Check off having the mock transfer.  Check off going around my principal and actually getting medical leave from school from HR.  Check off starting to give myself injections.  Check off starting the monitoring and bloodwork.  Check off telling my mother the news of what I was trying to do.  Check off getting transportation arranged and getting my injections in before boarding my flight.

But I hit a snag with the monitoring and bloodwork.  My estrogen levels aren't high enough and my follicles aren't growing.  Despite the fact that I am on day ten of the most aggressive drug protocol.  I am not responding.  I am stuck.  

Today, the doctor advised that we cancel this cycle.  There is no point in going forward.  In fact, there may not be any point in trying anything else.  There is only one other protocol that is used as a last resort, he said, and there's a 50% chance that I end up right where I am now.  He really recommends using donor eggs.  So donor eggs and donor sperm...  

My mother called me this past Monday to tell me that the news of what I was doing "devastated" my father.  She needed me to understand, she said, what I was putting him through.  I told her that I only had a 1 in 10 chance of getting pregnant and carrying a baby to term.  She and Dad had a 9 in 10 chance that I wouldn't be able to do so.  I just can't stomach the thought of seeing them knowing that, for them, this is good news.

I am tired.  I so wanted a child of my own.  I know adoption and the donor programs are great.  I know from my classroom that you don't have to be related to a child to love that child.  I know it's selfish.  But I wanted my own.  One that was mine.  That said I have been on this earth and made a difference.  One that would feel the connection to me of blood, of belonging.  One that I could think had my eyes or hair, my love of music, other family quirks.  One that I could share my stories of my grandparents journeys and lives with.  After 17 years of taking care of other peoples' children, watching some people without a thought or care have one after the other - one mom described it as a welfare raise - I wanted one for me, all for me, from the start.  Knowing now that that cannot happen is very hard.

I cannot believe that I put this off to the point that I no longer have a chance.  I feel like my body, my system, has betrayed me.  Which sounds so dumb.  I know that sounds melodramatic.  It's not like I am making a conscious choice.  I feel like I suck.  I am failing at something that is supposed to be natural.  I am broken as a woman.  I bear the mark of the curse each month but won't be able to benefit from the good that can come from that.  I cannot tell how many fifth grade girls I've had conversations with along the lines of, "yes it does suck to have this pain but do you want kids someday in the future? Yes. Well, this part stinks but someday you'll be glad to have gone through it."  This is awful.  I'm so disappointed.  I knew my odds weren't great but I thought I'd at least get the chance to try.  1 in 10 shifted to 0.  And more dreams are dying.

Last year, I had a fifth grade girl in one of my classes think she was pregnant.  Eleven years old and the mother's response, when she was told that the girl had written a note to her boyfriend saying the "scare" was over, was just that her elder sister had had a baby at fifteen and she probably would too.  No problems. Just a baby having a baby.  No need to discuss that with her daughter.  12 or 15 what does it matter when they have the baby...  Seems to me that there's a big difference there.  Can you imagine a pregnant fifth grader?  Does it make anyone else angry that someone like that can have four or five kids but so many of us can't even get one?

Tuesday, August 13, 2013

My $6K Miracle

The pharmacy at Shady Grove is amazing.  The nurses at Shady Grove are amazing.  I am feeling incredibly blessed today.

The price that was initially projected for the Gonal F was $6,000.  My heart kind of choked at that and I took a big breath because that was just one of the medicines.  I knew it was one of the more costly ones, but still that takes my breath away.  But immediately the financial counsellor directed me to Compassionate Care and I received a 50% discount.  That's great.  So instead of $1,250 per vial, it would be $625.  When I went into the pharmacy, the tech said she thought there might be insurance for some of my meds.  I said I didn't see how there could be as none of the treatment was covered.  She told me drug plans were different and we should double-check.  My insurance does cover several of the medications.  Bottom line was that all I was to pay for the Gonal F was $200 and the pharmacy had a coupon for $100 off.  I paid only $100 instead of $6,000.  How amazing is that?  I paid 1.6% of the initial cost.  This has to be one of the best pharmacies in the world!!  I should probably send that tech flowers... 

One of the nurses - not my primary nurse but the one that taught the injection class - told me that sometimes she gets medicine turned back in when a woman has been successful and doesn't need to have the meds for future cycles.  On Friday, she gave me 450IU of Gonal F.  On Monday, she gave me 15 vials of Menopur and the needles I will need.  She is hoping she can get me some more and that she might be able to get me the hCG trigger shot.  Speaking of injections, I'm feeling like a wuss.  Was anyone else nervous about self-administering shots?

I'm flying back to Texas tomorrow and school starts on Friday for the teachers.  I'm somewhat apprehensive about both of those things.  I'm supposed to start my cycle on Thursday and I feel like I might be early and start tomorrow.  I really hope it doesn't start until Thursday or Friday because that would work so much better with the school calendar.  Already my principal is going to be displeased.  It would be better if I was able to finish the first three weeks of school and get progress reports done before having to leave.  I'm trying to figure out when I'll have to take off for the monitoring, too.  I'm hoping that can be morning only and not be an entire day.  

Thursday, August 8, 2013

Compassionate Care

More good news on the financial front...  In less than two hours Compassionate Care determined that I do make little enough that they will be willing to help me with the Gonal F purchase.  I am going to receive a 50% discount.  So, the estimated price was $6K and now it would be $3K.  The nurse I worked with said she might be able to help me get some of the other medication.  But the Gonal F is the biggest cost, I believe.  Any kind of help is great!