Wednesday, August 21, 2013

Starting School and Counting Days

 Staff members have been back a week now and there is definitely a feeling of apprehension and anxiety in the school.  There has been a big shift on campus as we had the lowest performance on the state assessment in the district. People are worried. Jobs are on the line. The principal especially is in an uncertain position as his primary evaluation is that test.  If we don't improve, the Texas Education Agency will come into our school and clean house. Starting with the top. So he is being even more inclined to micromanage then last year.
Last year I started a sticky note campaign at my school. One of the district supervisors challenged us to improve the morale of our school and suggested leaving anonymous sticky notes with words of thanks, encouragement and praise.  So I did that last year.  The point isn't to take credit for the thoughts but lift up the staff when they are being beaten down by the reality of the challenges we face daily in our little ghetto.  And it did help.  People were talking about the notes, trying to figure out who was writing them and really pleased to be appreciated for a change.

The thing is that you can't indefinitely keep trying to build others up when you are being beaten down.  It's like the story with the bucket (How Full is Your Bucket?), if people keep tipping your bucket over and causing it to spill over, then eventually it'll run dry.  We all need the help of the people around us.  I went dry about half-way through October or November.  I was pleased not to have anyone figure out it was me leaving the notes.  I've started leaving the notes again this year.  With those test scores, morale is even lower than it was a year ago.  


In baby news, I'm taking the birth control pill for the first time. Seems a little odd to take the pill to set up for getting pregnant. Tomorrow I have the mock embryo transfer. That needed to be done while I was on the pill and I was able to get into the local doctor that was recommended tomorrow. I'm supposed to have my procedure at 2:00.  We have meetings tomorrow and then meet the teacher tomorrow evening.  We're supposed to be able to go around 2 or 2:15.  I'll need to leave at 1:30.  Next week I have to have a pap on Thursday afternoon - new patients can't be scheduled later than 2:50.  And then my Lupron evaluation that's supposed to be on the 31st will most likely be on the 30th.  Since I'm not a true patient of DFW Fertility, it doesn't seem like they're willing to see me on the weekend, which is a shame as I'm already going to miss so much school.  The protocol sheet once more seems screwed up vs. what the nurse first represented it to me.  The "trigger" shot is 'around day 12' and on the worksheet the nurse originally mapped out for me, there were very exact blocks of dates. I know real life isn't like conjecture but now she says that the 'day 12' wasn't from the protocol start it's the 12th medicated day.  Which on my cheat sheet it isn't... So she says that I don't have to go to MD so soon - I'm flying in on the 6th and she said I could come on the 9th - I'm thinking Friday evening or Monday evening? Not like there's much difference with the school schedule. I stay 3 days, have outside monitoring here and spend one extra day in school. She had first said it'd be 10 school days out, now it's 12. (Dear God, please let this work! I don't know what they'll do if I try to miss school again!)

I was able to get my leave sorted out.  Apparently there's a form to be filled out by the doctor and the principal cannot complain or refuse to honor what the doctor states.  Can't remember if I'd said but my principal wouldn't give me leave last October when I was trying. I was docked 2 days' pay... This time I have it all worked out and he won't have that chance!


Tuesday, August 13, 2013

My $6K Miracle

The pharmacy at Shady Grove is amazing.  The nurses at Shady Grove are amazing.  I am feeling incredibly blessed today.

The price that was initially projected for the Gonal F was $6,000.  My heart kind of choked at that and I took a big breath because that was just one of the medicines.  I knew it was one of the more costly ones, but still that takes my breath away.  But immediately the financial counsellor directed me to Compassionate Care and I received a 50% discount.  That's great.  So instead of $1,250 per vial, it would be $625.  When I went into the pharmacy, the tech said she thought there might be insurance for some of my meds.  I said I didn't see how there could be as none of the treatment was covered.  She told me drug plans were different and we should double-check.  My insurance does cover several of the medications.  Bottom line was that all I was to pay for the Gonal F was $200 and the pharmacy had a coupon for $100 off.  I paid only $100 instead of $6,000.  How amazing is that?  I paid 1.6% of the initial cost.  This has to be one of the best pharmacies in the world!!  I should probably send that tech flowers... 

One of the nurses - not my primary nurse but the one that taught the injection class - told me that sometimes she gets medicine turned back in when a woman has been successful and doesn't need to have the meds for future cycles.  On Friday, she gave me 450IU of Gonal F.  On Monday, she gave me 15 vials of Menopur and the needles I will need.  She is hoping she can get me some more and that she might be able to get me the hCG trigger shot.  Speaking of injections, I'm feeling like a wuss.  Was anyone else nervous about self-administering shots?

I'm flying back to Texas tomorrow and school starts on Friday for the teachers.  I'm somewhat apprehensive about both of those things.  I'm supposed to start my cycle on Thursday and I feel like I might be early and start tomorrow.  I really hope it doesn't start until Thursday or Friday because that would work so much better with the school calendar.  Already my principal is going to be displeased.  It would be better if I was able to finish the first three weeks of school and get progress reports done before having to leave.  I'm trying to figure out when I'll have to take off for the monitoring, too.  I'm hoping that can be morning only and not be an entire day.  

Thursday, August 8, 2013

Compassionate Care

More good news on the financial front...  In less than two hours Compassionate Care determined that I do make little enough that they will be willing to help me with the Gonal F purchase.  I am going to receive a 50% discount.  So, the estimated price was $6K and now it would be $3K.  The nurse I worked with said she might be able to help me get some of the other medication.  But the Gonal F is the biggest cost, I believe.  Any kind of help is great! 


What's Next...


I started this post almost a week ago but had to break it off because my friend and I were going to New York City for the weekend.  I'd never been before and she said we had to go.

But back on topic.  I met with the RE last Thursday and my numbers boil down to one shot in ten of a live birth with IVF.  They use ICSI with all frozen sperm.  So IVF with ICSI.  The IUI chance is 5% of getting pregnant and approximately half that of actually carrying the baby to term.

I was disappointed to hear the results but not really surprised because of what my numbers had been.  Looking at the cost of the procedures is scary and I'm going to have to take two weeks off of work to come back here for the monitoring, egg retrieval and transfer.  My principal was not supportive last year and I don't anticipate that he's had any change of heart.

Some good news is that as a teacher I make so little that I qualified for their Shared Help program and they'll discount some of the procedures by 30%.  That was very good news!!  I think I've decided to get the multi-cycle IVF.  

I took a class on injections yesterday and that is a bit daunting.  Much easier to stab that little cushion than giving it to myself I think.  And I'm going to be taking so much!  One of the financial counsellors  has given me information on a discount program for the Gonal F.  Apparently that alone will be as much as $6,000.  Wow.  Are the makers proud of themselves or what?  $6,000 for a few little bottles of medicine... 

Right now I'm feeling a little numb at the prospect of the school year starting next Friday with so very much unresolved.  Just wish there was a pause button that I could get everything I need to do done before moving on.